I have written before about an organization called Orange Socks. Their mission is to teach people about the joys of raising a child with disabilities. Most people hear about or assume the difficulties and Orange Socks wants people to know there are good times as well as hard times. Their tag line is “inspiring life despite a diagnosis.” Orange Socks interviews families who have a child with disabilities and posts the interviews on their website as well as doing podcasts. They want people who are facing a diagnosis to hear from people who actually have a child with that disability. It helps to learn from those who have gone before us, to learn from them the realities of raising that child, of the good and the hard.
The reason why I am writing about this again is thatI have been privileged to go to several of the interviews. I was touched by the fierce love and advocacy the parents all have for their child and in some cases, children. I was impressed that these parents spoke mostly of the joys and happiness their child has brought to their family. When asked about the difficulties every parent said it was worth it, that they got far more back than they ever gave. I was amazed that in every interview I went to, except for one, the parents all spoke about how they relied on prayer to help them with their challenges. They spoke of receiving inspiration to help guide them as they cared for their child. The interviews have taken place all over the country, with people from many different religions. It really surprised me that so many people talked about praying. It surprised me that so many talked about relying on God to help them. It gave me hope to know of so many good people in the world. Sometimes it is easy to focus on the distressing things we hear about going on in the world. The media seems to blast daily sometimes even hourly the bad things that occur. It’s easy to think that most people are unkind and hurtful from watching the news.
There was another thing that happened also has given me hope. Several years ago I attended a 3 week program in Minnesota that focused on how to live with chronic pain. Every morning we had to set goals for the day, which were written on a white board in the classroom. One day, another woman in the program said her goal for the day was to express more gratitude in her prayers. That one comment is probably the thing I remember most from attending the chronic pain program. It told me that way over in Minnesota, there was a woman who believed in praying, who believed in God and in acting on that belief. It showed me that there are good people all over the country and world. Sometimes it seems like there is so much bad, and hurtful and horrific things that are happening. When I reflect on the parents interviewed and the woman from the program, I remember that there are good people in the world. Good people who believe in praying and believe in God. Who believe in helping others and giving service to their children. Even with the media bombarding us about all of the bad happening I know there is much good in the world. We live in scary times, but we also live in good and hopeful times. Take time to look for the good and you will find it!
Recently I heard a delightful story in a talk at church. The story told of a woman who awoke one morning and only had three hairs. She looked into the mirror and said, “I think I’ll braid my hair today,” and went happily on her way. The following morning she awoke and only had two hairs. “Today I will part my hair,” she stated and again went happily on her way. The next morning she awoke and only had one hair left. “I think I will wear my hair in a pony tail today,” she said and of course went happily on her way. The fourth morning she awoke and had no hair at all on her head. “How lucky am I,” she said. “I don’t have to do my hair today.” Needless to say, she went happily on her way.
What a great illustration of looking someone looking at what she has instead of dwelling on what she didn’t have, and of making the best of a not-so-good situation. Each of us have not-so-good situations in life. Some of them easy so we can be like the woman in this story, although being bald would not be easy! Other times our challenges can be very difficult and it’s hard to focus on the positive. In the Book of Mormon we read of a group of people who were being persecuted and having difficulty bearing their afflictions. Through prayer they received help. The burdens weren’t removed but the people were strengthened to bear them with ease. In Mosiah 24:15 we read that they did “bear up their burdens with ease, and they did submit cheerfully and with patience to all the will of the Lord.” I think being cheerful, especially in difficulties, is another way of expressing faith and something I need to do better in. When I’m in the midst of a terrible migraine I find it difficult to be cheerful and sometimes I settle for pleasant. Often I’m not even close to pleasant and just have to grit my teeth and endure. Sometimes I find it hard not to be frantic with pain wondering how I’m going to survive. Even though I know the pain will eventually end it’s so hard to be patient and endure it. I truly admire people who are cheerful and look at what they have without dwelling on what’s not right in their lives. The story in Mosiah gives me something to shoot for: patiently and cheerfully submitting to the will of the Lord and looking for ways that He has strengthened me to endure this affliction easier. I hope that a year from now I can say that I have increased my ability to be cheerful, despite my circumstances, and thus more faithful. It should be easy. After all, I have more than three hairs on my head.
I have been struggling this week with migraines which is why I haven’t posted something sooner. This plague has been part of my life for over 40 years. Sometimes I wonder how I have survived them so long because some of them have been so horrendous, that when I was in the midst of them I didn’t want to be alive anymore. I have been to every kind of doctor to try to rid myself of this affliction, tried every kind of treatment and have prayed with faith and desperation. Yet, I still have them. After many prayers in which I pleaded for understanding, I received an answer as to why I have this terrible trial in my life. The answer that came was so that I would need God. The answer was humbling and yet unsatisfactory. Wasn’t there some other way? In fact it seemed like there were many other ways in which I needed my Father in Heaven. I have many children with difficult challenges which I prayed and worried about. We’ve had financial challenges through the years and just normal life situations. All through these I have prayed fervently for help. I also try to be diligent in scripture reading and saying my prayers and fulfilling my callings. It seems to me I try really hard to be a good person and yet, I still have these awful migraines. No matter what I do, lurking in the background is the fear that I will have a migraine and spoil yet another family outing or that I won’t be able to measure up in some way. I absolutely hate that these control my life. One particularly dark time started when my youngest child was almost 2 and my oldest was 17. For the next 6 years I had severe migraines every day and I lived in survival mode. It was during this time I sought every doctor and treatment I could find and nothing helped. I thought about dying because I thought that if my life offered me nothing but pain in the future, what was there to live for. I thought about dying because I wasn’t useful to anyone. I thought about dying because I hurt so much that I was existing and not really living.
Migraines obviously affected my family as well as myself. Sometimes I would lie in bed knowing I children who needed me, a household to run and a life to live. I wanted to be able to volunteer at my children’s schools and I wanted to fulfill church responsibilities. I wanted to be reliable and I wanted to be free of pain. I really wanted most of all to be a good wife and mother, and I couldn’t do any of these things. Most days I was lucky if I could do some laundry and put something in the crock pot so my family would have dinner. During those 6 years, and in subsequent years I did learn many things to help me get through those dark days. In future posts I will write some of the things I found helpful. Maybe they will be helpful to you too as you deal with whatever is painful in your life.
https://www.lds.org/general-conference/2018/10/wounded?lang=eng
https://www.lds.org/general-conference/2016/10/god-shall-wipe-away-all-tears?lang=eng